In 2012 MS (Multiple Sclerosis) paralyzed my left arm and left leg. Because of good medical care the damage was limited, and with medication the progression of the condition was slowed down. At the moment, the disease has more or less come to a standstill, but the damage done is irreversible. My left arm and left leg are not as they were before. Under this heading, I write about my personal experience with life with a disability due to MS.
My yearly MS check-up a year ago, was a short one, my doctor asked me about MS-related complaints, and I couldn’t think of any. The situation has been the same for years now, so I don’t have to come back unless new symptoms should occur.
Since I have MS, things feel different than before. I feel it when I play the piano. My left hand doesn’t move naturally. Things have changed in how it works, which is not surprising, as I have been paralysed on the left side of my body for a couple of weeks.
In the summer of 2012, I was discharged from the revalidation centre where I had stayed for two months, after the MS attack I had in the spring of that year. We went for a holiday to a cottage in Limburg, the very next day.
I come stumbling back from the bakery with a lot of bread in my bags. I see myself walking in my mind, moving irregularly, dragging along my left side. That’s rotten, yes, but there are people doing worse than me,…